Hemophilia A (factor VIII deficiency)
“Relationships are very important.”
Justin, who was diagnosed with hemophilia A (factor VIII deficiency) as a young child, is committed to giving back to the bleeding disorders community. That’s why, in his late 20s, he is continuing his education.
“I’m back in school studying marketing and public relations,” said Justin. “When I sit down and think about what I can offer the world, I feel helping the youth in the hemophilia community is where I can do the most good.”
Justin says he plans to draw on his education and personal experiences to reach kids in the community. One experience that Justin remembers fondly is the CSL Behring’s Gettin’ in the GameSM Junior National Championship (JNC) program.
“While at the JNC I had the opportunity to meet a number of people who shared similar experiences and I really enjoyed competing in golf,” said Justin. “I developed a relationship with CSL Behring and relationships are very important.”
A life-long sports enthusiast, Justin remains physically active by working out regularly.
“I take a lot of pride in how fit I am despite some of the damage that was done by the internal bleeding I had growing up,” he said. “As a kid, I was treated only when I was experiencing a bleed, while today I treat prophylactically.”
“With the knowledge, information, and programs that are available today, my advice to kids in the community would be to stay active, but be smart about it,” he said.
Justin added, “I also think kids should try and meet as many folks as they can because, as I learned from participating in the JNC, there are people who are dedicated and committed to helping those who are living with a bleeding disorder.”
BEFORE ENGAGING IN ANY TYPE OF PHYSICAL ACTIVITY, ALWAYS CONSULT WITH A HEALTHCARE PROFESSIONAL TO MAKE SURE THAT THE ACTIVITY IS RIGHT FOR YOU.