Jenn

von Willebrand disease (VWD) Type 2A

Jenn

“It’s critical that people with VWD learn about the importance of exercise, fitness, and stress management.”

With a love for the outdoors and physical fitness, Jenn cycled 7,000 miles (11,265 kilometers) last year alone—more than the distance from New York City to Tokyo, Japan. She peddled up hills and mountains totaling more than 562,000 feet (171,298 meters)—or more than 19 times the height of Mount Everest!

“When I am outdoors, I enjoy the ability to get away and be in an open space to explore and smell fresh air,” Jenn, who lives in the United States, said. “I feel like there is an unlimited area for me to enjoy when I’m on the bike. Cycling helps me get away from stress.”

One source of stress in Jenn’s life is von Willebrand disease or VWD.

“I had multiple surgeries before I was 18 that all resulted in severe bleeding,” Jenn said. “When I went for a consult to have my wisdom teeth removed at the age of 18, tests showed that I had a bleeding disorder.”

Jenn manages VWD with factor concentrate, which restores the clotting factor missing from her blood.

“Accidents happen, but knowing a treatment that works for me is available allows me to enjoy my outdoor activities without too much worry,” Jenn added.

When not on the bike, Jenn enjoys snowboarding, snowshoeing, hiking, rock climbing, and writing about the outdoors. She also serves as a member of the VWD Consumer Advisory Board for CSL Behring, where she shares her experiences with women and men who are managing VWD.

“It’s critical that people with VWD learn about the importance of exercise, fitness, and stress management,” Jenn added. “In life, my goal is to be as happy and as healthy as I can.”

BEFORE ENGAGING IN ANY TYPE OF PHYSICAL ACTIVITY, ALWAYS CONSULT WITH A HEALTHCARE PROFESSIONAL TO MAKE SURE THAT THE ACTIVITY IS RIGHT FOR YOU.