Bleeding Disorder Tips

The tips below were submitted by people dealing with issues associated with bleeding disorders. CSL Behring does not endorse, and is not responsible for, the content of the tips. If you have questions about the efficacy or practicality of any of the tips, please consult your healthcare professional before making any changes to your lifestyle or treatment regimen.

  • As teenagers, my girls were very self-conscious of their medical alerts. One didn’t want to wear hers at all, and took it with her but didn’t wear it. I went to a local jewelry store and got pretty medical alert ankle bracelets from a catalog that didn’t look so clunky but still got all their VWD info on it. It has really helped!
  • If you or your child is diagnosed with VWD, it’s important to educate others in your family about the disorder. It will help them support you and your child, and may spur some family members to get tested for the disorder
  • Knowing the type of bleeding disorder you have determines its treatment. To identify your disorder type, contact your healthcare professional or the nearest hemophilia treatment center
  • Heavy or prolonged bleeding during menstruation is the most common gynecologic problem for women with VWD. If your period interferes with your daily activities, consult with your treatment center’s nurse practitioner or doctor about treatment options
  • If you are a woman with a bleeding disorder, consider reaching out and connecting with other women with bleeding disorders. Your common experiences may lead to a wonderful support network. Our Facebook page is a great way to start connecting with others in the bleeding disorders community!
  • People with bleeding disorders may experience bleeding during or after dental procedures. Always contact your bleeding disorder treatment team prior to dental treatments such as fillings, extractions, block anesthesia, and root canals. They will work with your dentist to determine what medications you should receive prior to and after the procedure
  • Wear a medical identification bracelet or necklace with basic information: your diagnosis, treatment and product information. You can carry the name and telephone number of your doctor or hemophilia treatment center
  • Have you had your comprehensive care check-up yet? It’s important to visit your HTC regularly. You may wish to schedule your appointment at the same time each year, perhaps during your birth month or some other easily remembered date